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Hello! I have lots of posture issues. for starters, I have Postural… - Posture Issues [entries|archive|friends|userinfo]
Posture Issues

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[Jul. 23rd, 2005|07:32 pm]
Posture Issues
Hello! I have lots of posture issues. for starters, I have Postural Orethostatic Tachycardia Syndrome (POTS) which means my heart races something rotten when I stand.

In addition to that,I have Ehlers Danlos Syndrome- a connective tissue disorder that causes lots of joint pain. Sometimes lying completely flat ithe only thing that helps alleviate my pain.

I have real difficulties with hard backed and upright chairs. My pain is worst in my neck and shoulders- coathanger pain, I believe it's called.

But it also sucks in the legs and lower down my back too :(

I dread going out anywhere the chairs are hard- for some reason I end up with a head ache after about half an hour of sitting like this.

I can do ocmfy soft sofas where I can recline more.

I start Oxford in October for a masters and am hoping I can have some kind of comfy chair in the bodleian library! Otherwise life could be very difficult. Having my legs bent and my feet on the floor seems to cause problems. This may sound really odd, but if I can sit with my legs crossed and my feet at the same level as my butt- as you would if you were sitting on the floor, say, then it's not neaerly half so bad.

I dunno if it's relevant but my gran was born with spina bifida. It was operated on and she was ok. but all our lives my mum and I have had pain in our backs. We're both ok, as far as we know- but I have a big red strawberry birthmark right on the small of my back, where my gran's spina bifida was.

Aside from aching, I'm a 23 year old lass who lives in the Uk, just finished an English degree in Scotland. Hop;ing one day to be an academic...that's my dream :-) hope to speak to you all soon :-)

[User Picture]From: raiyne
2005-09-19 06:44 am (UTC)
My friend has EDS, type three I think
She thinks I have mardan syndrome but the doctors wont even check my out
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